we are research advocates
THE HEART OF OUR PROACTIVE APPROACH
It takes more than funding to cure childhood cancers. With improving survival rates our only goal, SKC applies a comprehensive understanding of the research landscape to accomplish its mission. To have a significant impact on survival, the stakeholders funding childhood cancer research must have a vision, strategy and measurable goals. Research will lead to the solution, taking this approach to funding will get us there faster.
WHAT IS RESEARCH ADVOCACY?
Patients with an in depth knowledge of their own condition are increasingly steering research in a number of different cancers. As the majority of children with cancer are unable to participate in such a way, parents, carers and charities are the logical advocates to play this role on their behalf.
Research advocacy in childhood cancer means giving parents a voice in what questions research is asking and what needs it should be meeting. SKC exists to make this voice louder and clearer.
Research advocacy helps set the right balance between the goals of researchers and the specific clinical needs of children with cancer. Bridging these two elements is the heart of research advocacy.
Nonprofits play a vital role in helping to identify current unmet needs and finding, prioritizing and advancing breakthrough research to match those needs quickly.
Through RESEARCH ADVOCACY, we can rapidly increase the number of research projects which have high potential for significant impact. Additionally, funders can better use their philanthropic dollars to invest in projects that have the highest potential to benefit children.
-Scott Kennedy, Founder, Solving Kids' Cancer
RESEARCH ADVOCACY IN ACTION
Prioritizing children currently battling cancer. Often, these are the children that are forgotten about in the future-focused quest to cure cancer. Current research should help these kids AND those yet to be diagnosed.
Possessing a comprehensive knowledge-base of the research landscape and the groups within it empowers us to drive change within the system we are trying to improve. This takes a dedicated and ongoing effort to understand past and current research, pre-clinical and clinical research as well as general cancer biology.
Daily mining of research data for breakthroughs - New cancer research papers are published every day. By constantly surveying the data and attending national research meetings, we can identify and prioritize early breakthroughs both in the lab and in adult clinical trials that have relevance to childhood cancers.
Identify and prioritize current unmet treatment needs of children and help translate research breakthroughs into new treatments. Parents and children are immersed in battling cancer while researchers and physicians are focusing on treating patients and grant writing. Organizations like SKC support both groups by creating a prioritized list of unmet needs and a strategy for a rapid path to develop breakthrough research into treatments in clinical trials.
Having a seat at the table with researchers to drive the research agenda. By having a comprehensive knowledge base of current breakthroughs and identifying unmet needs, we are able to share solutions as essential stakeholders with researchers who actually implement the research work. This is a rational progression from the traditional researcher-driven model to a new parent-driven one.
Ensuring that the clinical research is designed to benefit children rather than generating data for scientific publication. "Research" can be an infinite black hole. Cutting through the noise and the myriad possibilities, SKC advances the "1%" of research that has the highest potential to benefit children within their lifetime.
Drive accountability and effectiveness in the clinical trials we fund. By allocating funding in milestone payments based on accomplishments, negotiating responsible budgets and mandating ongoing reporting we have significantly improved the accountability of clinical research.
We strive to increase trial effectiveness by working with researchers to employ measures such as requiring a smaller number of patients to answer research questions quickly and ensure trial enrollment criteria only includes children most likely to benefit.