Advocacy in Action

Solving Kids’ Cancer was the first charity to ever go against the UK healthcare system without a pharmaceutical company involved. As a result, the National Institute for Health and Care Excellence (NICE) recently announced that it has upheld SKC’s appeal against the Institute’s decision not to recommend dinutuximab for treating high-risk neuroblastoma. 

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Precision Medicine Advances for Children With Neuroblastoma

Solving Kids’ Cancer (SKC) together with Wade’s Army announce their joint financial support of this Phase 1 clinical trial to test the safety and efficacy of various investigational drugs that will leverage precision medicine for children with neuroblastoma. This Next Generation Personalized Neuroblastoma Therapy – also known as NEPENTHE (Greek for “medicine for sorrow”) – is the first precision medicine trial for children that will robustly analyze the genomics of their cancer and use combinations of investigational drugs to target specific mutations in their tumors.

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SKC Formally Appeals NICE Decision

The National Institute for Health and Care Excellence (NICE) heard an appeal led by Solving Kids’ Cancer (SKC) against its recent decision to deny children in the UK treatment that is proven to significantly increase the chance of survival for children diagnosed with an aggressive childhood cancer, neuroblastoma.

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Access to Cures Should Have No Borders

The British healthcare system has rejected an FDA/EMA-approved treatment proven to increase survival rates for children with cancer.  NICE (National Institute for Health and Care Excellence) has rejected access to the drug across the UK, stating cost as the reason.  However, when analyzing the real expense on taxpayers, the cost amounts to less than 3 pence per person, per year, in order to give these children access to the life-saving antibody.

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The Promise of Immunotherapy

Immunotherapy is changing the paradigm for children with cancer. Solving Kids’ Cancer has teamed up with the same researchers who helped save Emily Whitehead’s life to bring a new treatment option for children with neuroblastoma. Meet one family that was on a Solving Kids’ Cancer clinical trial at the Children’s Hospital of Philadelphia

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